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Polycythemia vera


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#1 Slipper

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Posted 29 November 2011 - 04:23 PM


I took the boys to their first visit today with their new Pediatrician and he wants to test William for this blood disorder. He is displaying some signs that he may have it. I have NO idea what it actually is aside from a red blood cell issue. I am completely afraid to google it, so I have been a good girl and not done so.
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Tamara, proud single mommy to:

Donevan (November 20th, 2007) born at 39 wks 5 days, weighed 8lbs 6oz and 20.5 inches long
Nathaniel(December 4th, 2009) born at 37 weeks 1 day, weighed 6lbs 9oz and 19.6 inches long
William (December 4th, 2009) born at 37 weeks 1 day, weighed 5lbs 2oz and 18.5 inches long 3 days in the special care nursery for body temperature regulation and low birth weight. Readmitted to the NICU at 8 days old for Sepsis, severe jaundice and UTI, spent from Dec 11-Dec 25 in hospital.

#2 Moodyzblu

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Posted 29 November 2011 - 07:35 PM

I've never heard of it. Why does he think he has it ? I hope it isn't serious .. now I want to Google it.
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#3 TwinxesMom

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Posted 29 November 2011 - 09:21 PM

Has he tested him for anything else? I did google it and the symptoms are fairly common for several diseases...It's very rare and usually found in men over 40. Good news is the blood test will tell you if he has it.
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TabbiSue Single MOM to Jazzlyn Ranee 4lbs 9oz....Jesslyn Dunae 2lbs. 13oz....Born Oct. 25th 2005 @ 34 weeks and 1 day due to IUGR and 2 vessel cord.
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#4 Slipper

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Posted 29 November 2011 - 09:30 PM

They are going to be testing for a range of red blood cell disorders. So I'll guess I'll just wait and see.
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Tamara, proud single mommy to:

Donevan (November 20th, 2007) born at 39 wks 5 days, weighed 8lbs 6oz and 20.5 inches long
Nathaniel(December 4th, 2009) born at 37 weeks 1 day, weighed 6lbs 9oz and 19.6 inches long
William (December 4th, 2009) born at 37 weeks 1 day, weighed 5lbs 2oz and 18.5 inches long 3 days in the special care nursery for body temperature regulation and low birth weight. Readmitted to the NICU at 8 days old for Sepsis, severe jaundice and UTI, spent from Dec 11-Dec 25 in hospital.

#5 TwinxesMom

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Posted 29 November 2011 - 10:34 PM

At least he's on top of it. Jessy had some similar signs with her heart defect and it can be very scary :hug:
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TabbiSue Single MOM to Jazzlyn Ranee 4lbs 9oz....Jesslyn Dunae 2lbs. 13oz....Born Oct. 25th 2005 @ 34 weeks and 1 day due to IUGR and 2 vessel cord.
1 Year! Jazz 21lbs 4oz Jess 17lbs 4oz
2 Years Jazz 29lbs 35 1/2 in Jess 24lbs 33 1/2 in
4 years jazz 36lbs Jessy 30lbs
Jessy's Open Heart Suregery to correct ASD 1/7/10(2/15/10 went back to school)

RIP "Pa" Troy Lee Dooley 1/9/10
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#6 4jsinPA

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Posted 30 November 2011 - 08:26 AM

I haven't heard of it, I hope you get some answers! What did he say about Nathaniel and the concussion? All clear?
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#7 Slipper

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Posted 30 November 2011 - 10:28 AM

Nathaniel got the all clear, but still have to be careful with hitting his head. Nathaniel has been extra careful with his head though. Doesn't through himself around like he used too. I think he is afraid to hurt himself again. Thanks for asking.
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Tamara, proud single mommy to:

Donevan (November 20th, 2007) born at 39 wks 5 days, weighed 8lbs 6oz and 20.5 inches long
Nathaniel(December 4th, 2009) born at 37 weeks 1 day, weighed 6lbs 9oz and 19.6 inches long
William (December 4th, 2009) born at 37 weeks 1 day, weighed 5lbs 2oz and 18.5 inches long 3 days in the special care nursery for body temperature regulation and low birth weight. Readmitted to the NICU at 8 days old for Sepsis, severe jaundice and UTI, spent from Dec 11-Dec 25 in hospital.

#8 Slipper

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Posted 30 November 2011 - 10:30 AM

At least he's on top of it. Jessy had some similar signs with her heart defect and it can be very scary :hug:


Yes it is. He becomes jaundiced very easily especially with certain meds, so the Ped said that is a sign of a Red Blood Cell disorder. It also causes kids to be frequently sick. William is always sick. I think in his 2 yrs of life he has maybe a month-6 weeks cold/flu/ear infection free.
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Tamara, proud single mommy to:

Donevan (November 20th, 2007) born at 39 wks 5 days, weighed 8lbs 6oz and 20.5 inches long
Nathaniel(December 4th, 2009) born at 37 weeks 1 day, weighed 6lbs 9oz and 19.6 inches long
William (December 4th, 2009) born at 37 weeks 1 day, weighed 5lbs 2oz and 18.5 inches long 3 days in the special care nursery for body temperature regulation and low birth weight. Readmitted to the NICU at 8 days old for Sepsis, severe jaundice and UTI, spent from Dec 11-Dec 25 in hospital.

#9 Heathermomof6

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Posted 01 December 2011 - 12:09 AM

Yes it is. He becomes jaundiced very easily especially with certain meds, so the Ped said that is a sign of a Red Blood Cell disorder. It also causes kids to be frequently sick. William is always sick. I think in his 2 yrs of life he has maybe a month-6 weeks cold/flu/ear infection free.


Poor little guy!!!!!
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#10 TwinxesMom

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Posted 01 December 2011 - 12:26 AM

Jessy was sick like every 2-4 weeks from birth to 4 so I understand. Her surgery did wonders for her health. Hope they get it diagnosed. The jaundice can't be good on his poor little system
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TabbiSue Single MOM to Jazzlyn Ranee 4lbs 9oz....Jesslyn Dunae 2lbs. 13oz....Born Oct. 25th 2005 @ 34 weeks and 1 day due to IUGR and 2 vessel cord.
1 Year! Jazz 21lbs 4oz Jess 17lbs 4oz
2 Years Jazz 29lbs 35 1/2 in Jess 24lbs 33 1/2 in
4 years jazz 36lbs Jessy 30lbs
Jessy's Open Heart Suregery to correct ASD 1/7/10(2/15/10 went back to school)

RIP "Pa" Troy Lee Dooley 1/9/10
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