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Pregnant w/identical twins, no membrane


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#1 Irishlisa

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Posted 22 October 2007 - 06:51 PM


I am 14 weeks pregnant with identical twins and just found out there is no membrane seperating the babies. SCARED! My head is spinning from all the high risk complications (twin to twin transfusion syndrome, cord entaglement, hospital at 24 weeks, delivery very early, etc...). They are going to do another ultrasound this Thursday to confirm. I would appreciate advice from anyone with a similar diagnosis. Thank you!
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LISA

Posted Image Avery Daniel 4/9/04 @ 38 weeks
Posted Image Alexa Siobhan 11/11/05 @ 38 weeks
Posted Image Teagan Kathleen & Taryn Cynthia 3/3/08 monoamniotic twins @ 32 weeks 4 days

Teagan: 3lbs 15oz
8 weeks in the NICU

Taryn: 3lbs 14oz
3 weeks in the NICU


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"Love is all that matters. Love is everything. It is the sharing of songs and of silences, and
the holding of memories only the heart can see. In nothing are we as rich as
in our memories of love, for they are ours alone and tell our story. Love's
music may be different to each of us, but oh, how beautiful the dance."
Author Anonymous


#2 monie rose

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Posted 22 October 2007 - 07:00 PM

My sister went 41w with my neices and they are now 9 and doing great! She had no problems while she was pg and they were mo/mo as well! My twins were di/di and I ended up having ptl that was stopped @ 31w and was put on br @ 28w. Good Luck to you!
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#3 Irishlisa

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Posted 22 October 2007 - 07:02 PM

QUOTE(monie rose @ Oct 22 2007, 08:00 PM)  
My sister went 41w with my neices and they are now 9 and doing great! She had no problems while she was pg and they were mo/mo as well! My twins were di/di and I ended up having ptl that was stopped @ 31w and was put on br @ 28w. Good Luck to you!


Thank you so much, hearing that makes me feel better...
  • 0

LISA

Posted Image Avery Daniel 4/9/04 @ 38 weeks
Posted Image Alexa Siobhan 11/11/05 @ 38 weeks
Posted Image Teagan Kathleen & Taryn Cynthia 3/3/08 monoamniotic twins @ 32 weeks 4 days

Teagan: 3lbs 15oz
8 weeks in the NICU

Taryn: 3lbs 14oz
3 weeks in the NICU


Posted ImagePosted Image



"Love is all that matters. Love is everything. It is the sharing of songs and of silences, and
the holding of memories only the heart can see. In nothing are we as rich as
in our memories of love, for they are ours alone and tell our story. Love's
music may be different to each of us, but oh, how beautiful the dance."
Author Anonymous


#4 jasonsmommy

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Posted 22 October 2007 - 07:05 PM

Just saying Hello and Congrats on twins.. I know it is hard not to not worry, but keep your chin up! And update us after your next appointment!
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#5 Irishlisa

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Posted 22 October 2007 - 07:09 PM

QUOTE(jasonsmommy @ Oct 22 2007, 08:05 PM)  
Just saying Hello and Congrats on twins.. I know it is hard not to not worry, but keep your chin up! And update us after your next appointment!


  • 0

LISA

Posted Image Avery Daniel 4/9/04 @ 38 weeks
Posted Image Alexa Siobhan 11/11/05 @ 38 weeks
Posted Image Teagan Kathleen & Taryn Cynthia 3/3/08 monoamniotic twins @ 32 weeks 4 days

Teagan: 3lbs 15oz
8 weeks in the NICU

Taryn: 3lbs 14oz
3 weeks in the NICU


Posted ImagePosted Image



"Love is all that matters. Love is everything. It is the sharing of songs and of silences, and
the holding of memories only the heart can see. In nothing are we as rich as
in our memories of love, for they are ours alone and tell our story. Love's
music may be different to each of us, but oh, how beautiful the dance."
Author Anonymous


#6 Zit547

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Posted 22 October 2007 - 07:20 PM

My SIL has mo/mo twins that she delivered at 36 weeks, no NICU time and they are healthy 6 year olds now!
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#7 Irishlisa

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Posted 22 October 2007 - 07:27 PM

QUOTE(PgTimesTwo @ Oct 22 2007, 08:20 PM)  
My SIL has mo/mo twins that she delivered at 36 weeks, no NICU time and they are healthy 6 year olds now!

Thank you!
  • 0

LISA

Posted Image Avery Daniel 4/9/04 @ 38 weeks
Posted Image Alexa Siobhan 11/11/05 @ 38 weeks
Posted Image Teagan Kathleen & Taryn Cynthia 3/3/08 monoamniotic twins @ 32 weeks 4 days

Teagan: 3lbs 15oz
8 weeks in the NICU

Taryn: 3lbs 14oz
3 weeks in the NICU


Posted ImagePosted Image



"Love is all that matters. Love is everything. It is the sharing of songs and of silences, and
the holding of memories only the heart can see. In nothing are we as rich as
in our memories of love, for they are ours alone and tell our story. Love's
music may be different to each of us, but oh, how beautiful the dance."
Author Anonymous


#8 TwinxesMom

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Posted 22 October 2007 - 08:41 PM

They had a hard time finding my membrane at 24 weeks so they still may find one
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#9 AlwaysTwinMommy

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Posted 22 October 2007 - 10:24 PM

they didnt find my membrane for a while either so it is possible to still find it, if not there is a website, and i will get it for you if you would like its a support group for ppl who are pregnant w/ momo twins or who have had momo twins i subscribed when i thought i didnt have one, ppl dont post stuff as regular as you see on here but it is a help. Good luck and take it easy. even if they had a membrane ttts could still be an issue, im scared about that one. U should be fine!!!
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diagnosed with TTTS @ 27wks on 12/17/07, delivered the boys on 12/19/07 @ 27wks 3d
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#10 TwinMaker0709N13

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Posted 23 October 2007 - 01:10 AM

congrats'!!!!! I am having mo di girls and i got the ttts talk for a while and trust me ur dr will monitor u for it..
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#11 Debbie F

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Posted 23 October 2007 - 06:40 AM

My identical girls had no member either and that was 18 monhts ago. they are now doing great!! I went into the hosptial on 24/7 monitoring at 26 weeks and had a planned c-section at 32 weeks. the girls were small and spent 3 weeks in the NICU but are now doing great!!

Please email me if you would like more information or to talk. where are you from?
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#12 DblOsbornes

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Posted 23 October 2007 - 07:52 AM

QUOTE(Irishlisa @ Oct 22 2007, 07:51 PM)  
I am 14 weeks pregnant with identical twins and just found out there is no membrane seperating the babies. SCARED! My head is spinning from all the high risk complications (twin to twin transfusion syndrome, cord entaglement, hospital at 24 weeks, delivery very early, etc...). They are going to do another ultrasound this Thursday to confirm. I would appreciate advice from anyone with a similar diagnosis. Thank you!



I am almost 10wks, same situation. I've had 2 u/s and they can't see a membrane. My u/s pic compared to others looks a lot different. I am also very SCARED! My OB, even has commented after 17wks, he will have to refer me to a specialist!! rolleyes.gif
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#13 Debbie F

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Posted 23 October 2007 - 10:40 AM

Please try not to worry - your pregnancy can still have a wonderful outcome. While being pregnant with monoamniotic twins is scary and extremely high risk, you can still have 2 babies in the end. You will see a specialist and will eventually get placed in the hospital anywhere from 24 - 28 weeks. We chose 26 weeks. It was hard but well worth it.

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#14 ferfischer

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Posted 23 October 2007 - 10:51 AM

Take heart! They may still find a membrane. We didn't see a membrane until 16 weeks at least. Then, we couldn't find it at 18 weeks, because it was shrink wrapped around our smaller twin - therefore TTTS! Yikes!

It's very hard to see! Mo/mo twins are pretty rare (not that it doesn't happen) but only 1% of ID twins are mo/mo. The odds are in your favor that they'll find one.

Also, we have mo/di twins and we have TTTS. It is scary and terrifying. If you ever get this diagnosis, let me know - I will point you in the direction of some wonderful help. The biggest thing I can tell you, knowing you have one placenta no matter what:
1. drink lots of water
2. take it easy if you can - don't push yourself - focus your energy on the babies
3. boost your protein intake
4. take your prenatal

I've been on bedrest with TTTS since 18 weeks. I have made it to 34 weeks (almost!). TTTS only happens in 10-15% of monochorionic pregnancies - so the odds are in your favor that everything will be fine!

Bottom line - make sure to get the care you need, but the odds are that they will find a membrane and that you won't have TTTS. If you do, there are lots of places for support and you will get through it! It's ok!

Hugs,
Jenny
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#15 Trish_e

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Posted 23 October 2007 - 11:20 AM

I have mo/di twins and in the beginning they couldn't find a membrane. It was finally spotted at my 22 week u/s, it was super thin. Here is one of my u/s sound pics for one of my early u/s, as you can see it appears that there wasn't a membrane at all. Your doctors may still find one. I also found this website back when I though I was having mo/mo twins, it may be helpful for you. Good luck, I wish you a happy and healthy nine months.

MoMo support
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#16 Ericka B

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Posted 23 October 2007 - 11:28 AM

I do know that when I had my first u/s at 15 weeks the tech was a little inexperienced and had a hard time finding the membrane. The following week when I went to the peri they were able to see it. Also I just want to say that my best friend Elissa and her ID twin sister Emily were mono/mono twins and were born at 35 weeks with no complications at all. Congratulations on your twins! sign0016.gif to TS.
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#17 Susanna+5

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Posted 23 October 2007 - 11:55 AM

you know, someone on here whose twins had ttts wrote once that mo/mo twins actually rarely develop ttts. Not sure on how accurate that is...but Apparently one of the side benefits of being in the same sac with no membrane is that they do share amniotic fluid...so there is no risk of one twin getting a lot more fluid than the other. Obviously the placenta could still have issues... And clearly mo/mo twins have their own set of risks outside of ttts... but I thought at least that would be comforting to know that perhaps the risk of ttts is actually not as bad with mo/mo as it is with mo/di....
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#18 CROSSTWINS

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Posted 23 October 2007 - 12:27 PM

Just letting you know ultrasounds are not always 100% accurate. The whole time I was pregnant they told me I was mo/di after I had the babies they said 2 placentas & 2 membranes. You sure never could see it on the ultrasound though. Even my peri's all said that the membrane that seperated them was very thin. I guess everybody was wrong about the ultrasound or the reports on my placenta was wrong.. Try not to worry and everything will be perfect. Congrats on your twins.
Missy
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#19 Irishlisa

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Posted 23 October 2007 - 12:31 PM

QUOTE(Debbie F @ Oct 23 2007, 07:40 AM)  
My identical girls had no member either and that was 18 monhts ago. they are now doing great!! I went into the hosptial on 24/7 monitoring at 26 weeks and had a planned c-section at 32 weeks. the girls were small and spent 3 weeks in the NICU but are now doing great!!

Please email me if you would like more information or to talk. where are you from?


Connecticut.
Thank you so much, the doctors have already suggested going in the hospital at 24 weeks.
  • 0

LISA

Posted Image Avery Daniel 4/9/04 @ 38 weeks
Posted Image Alexa Siobhan 11/11/05 @ 38 weeks
Posted Image Teagan Kathleen & Taryn Cynthia 3/3/08 monoamniotic twins @ 32 weeks 4 days

Teagan: 3lbs 15oz
8 weeks in the NICU

Taryn: 3lbs 14oz
3 weeks in the NICU


Posted ImagePosted Image



"Love is all that matters. Love is everything. It is the sharing of songs and of silences, and
the holding of memories only the heart can see. In nothing are we as rich as
in our memories of love, for they are ours alone and tell our story. Love's
music may be different to each of us, but oh, how beautiful the dance."
Author Anonymous


#20 Irishlisa

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Posted 23 October 2007 - 12:34 PM

I can't thank everyone enough for the replies. It helps so much to hear from people who understand why I'm so scared. I just found this website last night and I am so grateful!
  • 0

LISA

Posted Image Avery Daniel 4/9/04 @ 38 weeks
Posted Image Alexa Siobhan 11/11/05 @ 38 weeks
Posted Image Teagan Kathleen & Taryn Cynthia 3/3/08 monoamniotic twins @ 32 weeks 4 days

Teagan: 3lbs 15oz
8 weeks in the NICU

Taryn: 3lbs 14oz
3 weeks in the NICU


Posted ImagePosted Image



"Love is all that matters. Love is everything. It is the sharing of songs and of silences, and
the holding of memories only the heart can see. In nothing are we as rich as
in our memories of love, for they are ours alone and tell our story. Love's
music may be different to each of us, but oh, how beautiful the dance."
Author Anonymous





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