Pregnant w/identical twins, no membrane

Discussion in 'Pregnancy Help' started by Irishlisa, Oct 22, 2007.

  1. Irishlisa

    Irishlisa Well-Known Member

    I am 14 weeks pregnant with identical twins and just found out there is no membrane seperating the babies. SCARED! My head is spinning from all the high risk complications (twin to twin transfusion syndrome, cord entaglement, hospital at 24 weeks, delivery very early, etc...). They are going to do another ultrasound this Thursday to confirm. I would appreciate advice from anyone with a similar diagnosis. Thank you!
     
  2. monie rose

    monie rose Well-Known Member

    My sister went 41w with my neices and they are now 9 and doing great! She had no problems while she was pg and they were mo/mo as well! My twins were di/di and I ended up having ptl that was stopped @ 31w and was put on br @ 28w. Good Luck to you!
     
  3. Irishlisa

    Irishlisa Well-Known Member

    QUOTE(monie rose @ Oct 22 2007, 08:00 PM) [snapback]462599[/snapback]
    My sister went 41w with my neices and they are now 9 and doing great! She had no problems while she was pg and they were mo/mo as well! My twins were di/di and I ended up having ptl that was stopped @ 31w and was put on br @ 28w. Good Luck to you!


    Thank you so much, hearing that makes me feel better...
     
  4. jasonsmommy

    jasonsmommy Well-Known Member

    Just saying Hello and Congrats on twins.. I know it is hard not to not worry, but keep your chin up! And update us after your next appointment!
     
  5. Irishlisa

    Irishlisa Well-Known Member

    QUOTE(jasonsmommy @ Oct 22 2007, 08:05 PM) [snapback]462607[/snapback]
    Just saying Hello and Congrats on twins.. I know it is hard not to not worry, but keep your chin up! And update us after your next appointment!
     
  6. AimeeThomp

    AimeeThomp Well-Known Member TS Moderator

    My SIL has mo/mo twins that she delivered at 36 weeks, no NICU time and they are healthy 6 year olds now!
     
  7. Irishlisa

    Irishlisa Well-Known Member

    QUOTE(PgTimesTwo @ Oct 22 2007, 08:20 PM) [snapback]462630[/snapback]
    My SIL has mo/mo twins that she delivered at 36 weeks, no NICU time and they are healthy 6 year olds now!

    Thank you!
     
  8. TwinxesMom

    TwinxesMom Well-Known Member

    They had a hard time finding my membrane at 24 weeks so they still may find one
     
  9. blueeyez553

    blueeyez553 Well-Known Member

    they didnt find my membrane for a while either so it is possible to still find it, if not there is a website, and i will get it for you if you would like its a support group for ppl who are pregnant w/ momo twins or who have had momo twins i subscribed when i thought i didnt have one, ppl dont post stuff as regular as you see on here but it is a help. Good luck and take it easy. even if they had a membrane ttts could still be an issue, im scared about that one. U should be fine!!!
     
  10. jato63@aol.com

    jato63@aol.com Well-Known Member

    congrats'!!!!! I am having mo di girls and i got the ttts talk for a while and trust me ur dr will monitor u for it..
     
  11. Debbie F

    Debbie F Well-Known Member

    My identical girls had no member either and that was 18 monhts ago. they are now doing great!! I went into the hosptial on 24/7 monitoring at 26 weeks and had a planned c-section at 32 weeks. the girls were small and spent 3 weeks in the NICU but are now doing great!!

    Please email me if you would like more information or to talk. where are you from?
     
  12. krisnmike04

    krisnmike04 Active Member

    QUOTE(Irishlisa @ Oct 22 2007, 07:51 PM) [snapback]462586[/snapback]
    I am 14 weeks pregnant with identical twins and just found out there is no membrane seperating the babies. SCARED! My head is spinning from all the high risk complications (twin to twin transfusion syndrome, cord entaglement, hospital at 24 weeks, delivery very early, etc...). They are going to do another ultrasound this Thursday to confirm. I would appreciate advice from anyone with a similar diagnosis. Thank you!



    I am almost 10wks, same situation. I've had 2 u/s and they can't see a membrane. My u/s pic compared to others looks a lot different. I am also very SCARED! My OB, even has commented after 17wks, he will have to refer me to a specialist!! :rolleyes:
     
  13. Debbie F

    Debbie F Well-Known Member

    Please try not to worry - your pregnancy can still have a wonderful outcome. While being pregnant with monoamniotic twins is scary and extremely high risk, you can still have 2 babies in the end. You will see a specialist and will eventually get placed in the hospital anywhere from 24 - 28 weeks. We chose 26 weeks. It was hard but well worth it.
     
  14. ferfischer

    ferfischer Well-Known Member

    Take heart! They may still find a membrane. We didn't see a membrane until 16 weeks at least. Then, we couldn't find it at 18 weeks, because it was shrink wrapped around our smaller twin - therefore TTTS! Yikes!

    It's very hard to see! Mo/mo twins are pretty rare (not that it doesn't happen) but only 1% of ID twins are mo/mo. The odds are in your favor that they'll find one.

    Also, we have mo/di twins and we have TTTS. It is scary and terrifying. If you ever get this diagnosis, let me know - I will point you in the direction of some wonderful help. The biggest thing I can tell you, knowing you have one placenta no matter what:
    1. drink lots of water
    2. take it easy if you can - don't push yourself - focus your energy on the babies
    3. boost your protein intake
    4. take your prenatal

    I've been on bedrest with TTTS since 18 weeks. I have made it to 34 weeks (almost!). TTTS only happens in 10-15% of monochorionic pregnancies - so the odds are in your favor that everything will be fine!

    Bottom line - make sure to get the care you need, but the odds are that they will find a membrane and that you won't have TTTS. If you do, there are lots of places for support and you will get through it! It's ok!

    Hugs,
    Jenny
     
  15. Trish_e

    Trish_e Well-Known Member

    I have mo/di twins and in the beginning they couldn't find a membrane. It was finally spotted at my 22 week u/s, it was super thin. Here is one of my u/s sound pics for one of my early u/s, as you can see it appears that there wasn't a membrane at all. Your doctors may still find one. I also found this website back when I though I was having mo/mo twins, it may be helpful for you. Good luck, I wish you a happy and healthy nine months.

    MoMo support
     
  16. Ericka B

    Ericka B Well-Known Member

    I do know that when I had my first u/s at 15 weeks the tech was a little inexperienced and had a hard time finding the membrane. The following week when I went to the peri they were able to see it. Also I just want to say that my best friend Elissa and her ID twin sister Emily were mono/mono twins and were born at 35 weeks with no complications at all. Congratulations on your twins! :sign0016: to TS.
     
  17. Susanna+3

    Susanna+3 Well-Known Member

    you know, someone on here whose twins had ttts wrote once that mo/mo twins actually rarely develop ttts. Not sure on how accurate that is...but Apparently one of the side benefits of being in the same sac with no membrane is that they do share amniotic fluid...so there is no risk of one twin getting a lot more fluid than the other. Obviously the placenta could still have issues... And clearly mo/mo twins have their own set of risks outside of ttts... but I thought at least that would be comforting to know that perhaps the risk of ttts is actually not as bad with mo/mo as it is with mo/di....
     
  18. CROSSTWINS

    CROSSTWINS Well-Known Member

    Just letting you know ultrasounds are not always 100% accurate. The whole time I was pregnant they told me I was mo/di after I had the babies they said 2 placentas & 2 membranes. You sure never could see it on the ultrasound though. Even my peri's all said that the membrane that seperated them was very thin. I guess everybody was wrong about the ultrasound or the reports on my placenta was wrong.. Try not to worry and everything will be perfect. Congrats on your twins.
    Missy
     
  19. Irishlisa

    Irishlisa Well-Known Member

    QUOTE(Debbie F @ Oct 23 2007, 07:40 AM) [snapback]463004[/snapback]
    My identical girls had no member either and that was 18 monhts ago. they are now doing great!! I went into the hosptial on 24/7 monitoring at 26 weeks and had a planned c-section at 32 weeks. the girls were small and spent 3 weeks in the NICU but are now doing great!!

    Please email me if you would like more information or to talk. where are you from?


    Connecticut.
    Thank you so much, the doctors have already suggested going in the hospital at 24 weeks.
     
  20. Irishlisa

    Irishlisa Well-Known Member

    I can't thank everyone enough for the replies. It helps so much to hear from people who understand why I'm so scared. I just found this website last night and I am so grateful!
     
  21. krisnmike04

    krisnmike04 Active Member

    QUOTE(Susanna+3 @ Oct 23 2007, 12:55 PM) [snapback]463529[/snapback]
    you know, someone on here whose twins had ttts wrote once that mo/mo twins actually rarely develop ttts. Not sure on how accurate that is...but Apparently one of the side benefits of being in the same sac with no membrane is that they do share amniotic fluid...so there is no risk of one twin getting a lot more fluid than the other. Obviously the placenta could still have issues... And clearly mo/mo twins have their own set of risks outside of ttts... but I thought at least that would be comforting to know that perhaps the risk of ttts is actually not as bad with mo/mo as it is with mo/di....


    Well I know I feel a little better, thanks everyone. We are going back on the 16th so hopefully we can see LOTS of progress. After TTC for a few years, this has all been a little overwhelming to say the least! I'm really glad I found this sight, and can't wait to get to know everyone! It has already been so helpful!
    :love0028:
     
  22. Irishlisa

    Irishlisa Well-Known Member

    QUOTE(DblOsbornes @ Oct 23 2007, 01:41 PM) [snapback]463626[/snapback]
    Well I know I feel a little better, thanks everyone. We are going back on the 16th so hopefully we can see LOTS of progress. After TTC for a few years, this has all been a little overwhelming to say the least! I'm really glad I found this sight, and can't wait to get to know everyone! It has already been so helpful!
    :love0028:



    I feel better too.
     
  23. Overachiever

    Overachiever Well-Known Member

    I don't have any experience this, but in any case, CONGRATULATIONS! on your twins. We're glad you found us. Keep us updated so we can send :hug99: your way!
     
  24. jfelix

    jfelix Well-Known Member

    Just wondering how things were going. I had mo-mo twins. I spent 5 weeks in the hospital, and delivered at 31 weeks. My girls developed TTTS at the very end. The docs were going to deliver at 32 weeks, but Abbie's heart rate dropped and stayed too low.

    Hope you are doing well!
     
  25. jillangel

    jillangel Well-Known Member

    Congrats! We too had a hard time finding a membrane (but eventually did) and developed ttts (stage two) from week 13 until week 36 when I delivered healthy girls who came home from the hospital with us. It is extremely scary but with great doctor supervision you too could have a positive outcome. I'm wishing you the best. Good luck!
     
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